Pain Smart Education research output

@article{doEspiritoSanto2024,

title = {Measurement properties of the EQ-5D in children and adolescents: a systematic review protocol},

author = {Caique de Melo do Espirito Santo and Verônica Souza Santos and Gisela Cristiane Miyamoto and Alessandro Chiarotto and Marisa Santos and Tiê Parma Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/02/Measurement-properties-of-the-EQ-5D-Systematic-Reviews-in-children-and-adolescents.pdf, PDF},

doi = {10.1186/s13643-023-02443-7},

issn = {2046-4053},

year  = {2024},

date = {2024-12-00},

urldate = {2024-12-00},

journal = {Syst Rev},

volume = {13},

number = {1},

publisher = {Springer Science and Business Media LLC},

abstract = {<jats:title>Abstract</jats:title><jats:sec>

                <jats:title>Background</jats:title>

                <jats:p>Although the EQ-5D instruments have been initially designed for adult populations, there are new studies evaluating and applying these instruments to children and adolescents. The EuroQol Group adapted and created two versions designed for these groups, i.e., the EQ-5D-Y versions. The measurement properties of the EQ-5D have been systematically reviewed in different health conditions. However, there is a lack of a proper systematic assessment including the studies’ risk of bias and focusing on recent studies assessing the EQ-5D instruments in children and adolescents. The lack of a systematic assessment of the EQ-5D versions does not allow us to have a comprehensive evaluation of the validity, reliability, and responsiveness of these instruments among children and adolescents. This systematic review aims to critically appraise and summarize the evidence on the measurement properties of the EQ-5D instruments (self-reported version – answered by children and adolescents; and proxy versions – versions reported by parents, caregivers, or health professionals) in children and adolescents.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Methods</jats:title>

                <jats:p>A systematic review searching the following electronic databases: MEDLINE, EMBASE, CINAHL, EconLit, National Health Service Economic Evaluation Database (NHS-EED), Health Technology Assessment (HTA) database. Two independent reviewers will screen titles and abstracts and select full texts for eligibility. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) methodology will be followed to conduct three main assessment steps: risk of bias, quality criteria for measurement properties, and evidence synthesis.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Discussion</jats:title>

                <jats:p>This systematic review will provide comprehensive information about the evidence regarding the measurement properties of EQ-5D instruments in children and adolescents of different settings and countries.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Systematic review registration</jats:title>

                <jats:p>Open Science Framework with Registration <jats:ext-link xmlns:xlink="http://www.w3.org/1999/xlink" ext-link-type="uri" xlink:href="https://osf.io/r8kt9/">https://osf.io/r8kt9/</jats:ext-link> and PROSPERO: CRD42020218382.</jats:p>

              </jats:sec>},

keywords = {Medicine (miscellaneous), Pain, Treatment},

pubstate = {published},

tppubtype = {article}

}

@article{Bogard2024b,

title = {Exploring Adolescents' Understanding, Experiences and Beliefs About Pain: A Qualitative Study},

author = {Isabelle Bogard and Julie Ayre and Jenna Smith and Joshua W. Pate and Andrew Sortwell and Jonah Gorringe and Georgia Gordon and Steven J. Kamper and Tie P. Yamato},

url = {undefined},

doi = {10.1111/hex.70132},

issn = {1369-7625},

year  = {2024},

date = {2024-12-00},

urldate = {2024-12-00},

journal = {Health Expectations},

volume = {27},

number = {6},

publisher = {Wiley},

abstract = {<jats:title>ABSTRACT</jats:title><jats:sec><jats:title>Background</jats:title><jats:p>Pain is prevalent across the lifespan and contributes to significant societal and economic burdens. The public often holds misconceptions about pain and pain management. Despite this, there are no well‐resourced public health initiatives delivering information about pain and pain management to the public. Adolescence is an opportune time to educate the public about pain. Health interventions designed for adolescents should reflect their understanding, beliefs and experiences; however, no studies explore this in non‐clinical populations of adolescents. We aimed to explore adolescents' understanding, experiences and beliefs about pain to inform the development of a school‐based pain education module.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>We conducted semi‐structured interviews with 25 adolescents in grades 7–10 (ages 11–16) attending Australian secondary schools. Interviews were conducted on video‐conferencing software, audio‐recorded, transcribed verbatim and analysed using Framework Analysis.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>We generated three themes: (i) physical and psychological pain are distinct, (ii) psychological and contextual factors influence how someone feels or reacts to physical pain and (iii) physical pain matters if it impacts participation in meaningful activities.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>Adolescents' understanding and beliefs about pain do not always align with current scientific understanding of pain. School‐based pain education programmes should target these areas of misalignment. Addressing adolescents' misconceptions about pain through pain education could also create a more supportive school environment for adolescents experiencing pain. Interactive approaches to learning, such as discussions that encourage adolescents to reflect on their experiences of pain, could be a promising avenue for pain education.</jats:p></jats:sec><jats:sec><jats:title>Patient or Public Contribution</jats:title><jats:p>Two co‐authors are part of the study population and contributed to the study design and analysis. Their input ensured the interview guide was appropriate for the target population and provided an adolescent perspective on the findings. They were remunerated for their time in accordance with consumer involvement guidelines.</jats:p></jats:sec>},

keywords = {Pain, Treatment},

pubstate = {published},

tppubtype = {article}

}

@article{Bogard2024,

title = {Let’s Talk about Pain: Integrating Pain Education into Health and Physical Education},

author = {Isabelle Bogard and Steven J. Kamper and Andrew Sortwell and Christopher M. Williams and Urs Granacher and Ferman Konukman and Tie P. Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2025/01/2024_Bogard_Lets-talk-about-pain_Educators-Corner.pdf},

doi = {10.1080/08924562.2024.2402666},

issn = {2168-3778},

year  = {2024},

date = {2024-11-00},

urldate = {2024-11-00},

journal = {Strategies},

volume = {37},

number = {6},

pages = {40--45},

publisher = {Informa UK Limited},

keywords = {Pain, Treatment},

pubstate = {published},

tppubtype = {article}

}

@article{EspiritoSanto2023,

title = {Overview of the economic burden of musculoskeletal pain in children and adolescents: a systematic review with meta-analysis},

author = {Caique de Melo Espirito Santo and Verônica S. Santos and Steven J. Kamper and Christopher M. Williams and Gisela C. Miyamoto and Tiê P. Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Overview-of-the-economic-burden-of-musculoskeletal_a-systematic-review-with-meta-analysis.pdf, PDF},

doi = {10.1097/j.pain.0000000000003037},

issn = {1872-6623},

year  = {2024},

date = {2024-00-00},

urldate = {2024-00-00},

journal = {PAIN},

volume = {165},

number = {2},

pages = {296--323},

publisher = {Ovid Technologies (Wolters Kluwer Health)},

abstract = {<jats:title>Abstract</jats:title>

          <jats:p>Studies suggest a high economic burden among children and adolescents with musculoskeletal pain. There is no summary in the literature on the overall economic burden of musculoskeletal pain in children and adolescents. The aim of this systematic review of cost-of-illness studies was to synthesize the economic burden of musculoskeletal pain in children and adolescents. We conducted electronic searches on MEDLINE, EMBASE, CINAHL, EconLit, NHSEED, and HTA databases. We included cost-of-illness studies that estimated healthcare, patient/family, lost productivity, and/or societal costs in children and adolescents with musculoskeletal pain. The risk of bias was assessed with the Consolidated Health Economic Evaluation Reporting Standards checklist. All values were adjusted to the same reference year (2021) and converted to American Dollar. We included 45 cost-of-illness studies (n = 665,623). Twenty-two studies estimated the annual healthcare costs that ranged from $143 to $41,379 per patient. Nine studies estimated the annual patient/family costs that ranged from $287 to $27,972 per patient. Seven studies estimated the annual lost productivity costs that ranged from $124 to $4671 per patient. Nine studies estimated the annual societal costs that ranged from $1095 to $69,351 per patient. Children and adolescents with juvenile idiopathic arthritis and musculoskeletal pain had higher annual incremental healthcare costs than those without these conditions (mean difference: $3800 higher, 95% confidence interval [CI]: 50-7550; mean difference: $740 higher, 95% CI: 470-1,010, respectively). In conclusion, the estimated annual economic burden of children and adolescents with musculoskeletal pain ranged from $124 to $69,351.</jats:p>},

keywords = {Anesthesiology and Pain Medicine, Neurology, Neurology (clinical), Pain},

pubstate = {published},

tppubtype = {article}

}

@article{NascimentoLeite2023,

title = {Physical activity and education about physical activity for chronic musculoskeletal pain in children and adolescents},

author = {Mariana Nascimento Leite and Steven J Kamper and Neil E O'Connell and Zoe A Michaleff and Emma Fisher and Priscilla Viana Silva and Christopher M Williams and Tiê P Yamato},

editor = { },

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Physical-activity-and-education-about-physical-activity-for-chronic-musculoskeletal-pain-in-children-and-adolescents.pdf, PDF},

doi = {10.1002/14651858.cd013527.pub2},

issn = {1465-1858},

year  = {2023},

date = {2023-07-00},

urldate = {2023-07-00},

volume = {2023},

number = {7},

publisher = {Wiley},

keywords = {Pain, Pharmacology (medical)},

pubstate = {published},

tppubtype = {article}

}

@article{Santos2023,

title = {A new version of a measurement for presence and impact of pain in children and adolescents - Presence and impact of pain in Kids (PIP-KIDS) questionnaire: Translation, cross-cultural adaptation and measurement properties into Brazilian-Portuguese},

author = {Veronica Souza Santos and Aron Downie and Steven J. Kamper and Tie P. Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/A-new-version-of-a-measurement-for-presence-and-impact-of-pain-in-children-and-adolescents.pdf, PDF},

doi = {10.1016/j.msksp.2023.102772},

issn = {2468-7812},

year  = {2023},

date = {2023-06-00},

urldate = {2023-06-00},

journal = {Musculoskeletal Science and Practice},

volume = {65},

publisher = {Elsevier BV},

keywords = {Pain, Physical Therapy, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{O’Keeffe2022,

title = {Defining Growing Pains: A Scoping Review},

author = {Mary O’Keeffe and Steven J Kamper and Laura Montgomery and Amanda Williams and Alexandra Martiniuk and Barbara Lucas and Amabile B Dario and Michael S Rathleff and Lise Hestbaek and Christopher M Williams},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Defining-Growing-Pains-A-Scoping-Review.pdf, PDF},

doi = {10.1542/peds.2021-052578},

issn = {1098-4275},

year  = {2022},

date = {2022-08-01},

urldate = {2022-08-01},

volume = {150},

number = {2},

publisher = {American Academy of Pediatrics (AAP)},

abstract = {<jats:sec>

                  <jats:title />

               </jats:sec>

               <jats:sec>

                  <jats:title>BACKGROUND AND OBJECTIVES</jats:title>

                  <jats:p>Up to one third of children may be diagnosed with growing pains, but considerable uncertainty surrounds how to make this diagnosis. The objective of this study was to detail the definitions of growing pains in the medical literature.</jats:p>

               </jats:sec>

               <jats:sec>

                  <jats:title>METHODS</jats:title>

                  <jats:p>Scoping review with 8 electronic databases and 6 diagnostic classification systems searched from their inception to January 2021. The study selection included peer-reviewed articles or theses referring to “growing pain(s)” or “growth pain(s)” in relation to children or adolescents. Data extraction was performed independently by 2 reviewers.</jats:p>

               </jats:sec>

               <jats:sec>

                  <jats:title>RESULTS</jats:title>

                  <jats:p>We included 145 studies and 2 diagnostic systems (ICD-10 and SNOMED). Definition characteristics were grouped into 8 categories: pain location, age of onset, pain pattern, pain trajectory, pain types and risk factors, relationship to activity, severity and functional impact, and physical examination and investigations. There was extremely poor consensus between studies as to the basis for a diagnosis of growing pains. The most consistent component was lower limb pain, which was mentioned in 50% of sources. Pain in the evening or night (48%), episodic or recurrent course (42%), normal physical assessment (35%), and bilateral pain (31%) were the only other components to be mentioned in more than 30% of articles. Notably, more than 80% of studies made no reference to age of onset in their definition, and 93% did not refer to growth. Limitations of this study are that the included studies were not specifically designed to define growing pains.</jats:p>

               </jats:sec>

               <jats:sec>

                  <jats:title>CONCLUSIONS</jats:title>

                  <jats:p>There is no clarity in the medical research literature regarding what defines growing pain. Clinicians should be wary of relying on the diagnosis to direct treatment decisions.</jats:p>

               </jats:sec>},

keywords = {Pain, Pediatrics, Perinatology and Child Health},

pubstate = {published},

tppubtype = {article}

}

@article{Santos2022,

title = {Translation, cross-cultural adaptation, and measurement properties of the psychosomatic questionnaire for children and adolescents with musculoskeletal pain into Brazilian-Portuguese},

author = {Veronica Souza Santos and Steven J. Kamper and Barbara Isabel Aparecida Camargo and Mariana Nascimento Leite and Bruno T. Saragiotto and Leonardo O.P. Costa and Tiê P. Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Translation-cross-cultural-adaptation-and-measurement-properties-of-the-psychosomatic-questionnaire-for-children-.pdf, PDF},

doi = {10.1016/j.bjpt.2022.100399},

issn = {1413-3555},

year  = {2022},

date = {2022-05-00},

urldate = {2022-05-00},

journal = {Brazilian Journal of Physical Therapy},

volume = {26},

number = {3},

publisher = {Elsevier BV},

keywords = {Orthopedics and Sports Medicine, Pain, Physical Therapy, Rehabilitation, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{Leake2019,

title = {Talking to Teens about Pain: A Modified Delphi Study of Adolescent Pain Science Education},

author = {Hayley B. Leake and Lauren C. Heathcote and Laura E. Simons and Jennifer Stinson and Steven J. Kamper and Christopher M. Williams and Laura L. Burgoyne and Meredith Craigie and Marjolein Kammers and David Moen and Joshua W. Pate and Kimberley Szeto and G. Lorimer Moseley},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Talking-to-Teens-about-Pain-A-Modified-Delphi-Study-of-Adolescent-Pain-Science-Education.pdf, PDF},

doi = {10.1080/24740527.2019.1682934},

issn = {2474-0527},

year  = {2019},

date = {2019-01-00},

urldate = {2019-01-00},

journal = {Canadian Journal of Pain},

volume = {3},

number = {1},

pages = {200--208},

publisher = {Informa UK Limited},

keywords = {Anesthesiology and Pain Medicine, Pain},

pubstate = {published},

tppubtype = {article}

}

@article{Dario2019,

title = {Family history of pain and risk of musculoskeletal pain in children and adolescents: a systematic review and meta-analysis},

author = {Amabile B. Dario and Steven J. Kamper and Mary O'Keeffe and Joshua Zadro and Hopin Lee and Luke Wolfenden and Christopher M. Williams},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Family-history-of-pain-and-risk-of-musculoskeletal-pain_-a-systematic-review.pdf, PDF},

doi = {10.1097/j.pain.0000000000001639},

issn = {1872-6623},

year  = {2019},

date = {2019-00-00},

urldate = {2019-00-00},

journal = {PAIN},

volume = {160},

number = {11},

pages = {2430--2439},

publisher = {Ovid Technologies (Wolters Kluwer Health)},

abstract = {<jats:title>Abstract</jats:title>

          <jats:p>Emerging evidence suggests that musculoskeletal (MSK) pain should be viewed from a biopsychosocial perspective and consider the influence of family factors. We conducted a review with meta-analysis to provide summary estimates of effect of family history of pain on childhood MSK pain and explore whether specific family pain factors influence the strength of the association (PROSPERO CRD42018090130). Included studies reported associations between family history of pain and nonspecific MSK pain in children (age <19 years). The outcome of interest was MSK pain in children. We assessed the methodological quality using a modified version of the Quality in Prognosis Studies instrument and quality of evidence for the main analyses using the GRADE criteria. After screening of 7281 titles, 6 longitudinal and 23 cross-sectional studies were included. Moderate quality evidence from 5 longitudinal studies (n = 42,131) showed that children with a family history of MSK pain had 58% increased odds of experiencing MSK pain themselves (odds ratio [OR] 1.58, 95% confidence interval 1.20-2.09). Moderate quality evidence from 18 cross-sectional studies (n = 17,274) supported this finding (OR 2.02, 95% 1.69-2.42). Subgroup analyses showed that the relationship was robust regardless of whether a child's mother, father, or sibling experienced pain. Odds were higher when both parents reported pain compared with one ([mother OR = 1.61; father OR = 1.59]; both parents OR = 2.0). Our findings show moderate quality evidence that children with a family history of pain are at higher risk of experiencing MSK pain. Understanding the mechanism by which this occurs would inform prevention and treatment efforts.</jats:p>},

keywords = {Anesthesiology and Pain Medicine, Neurology, Neurology (clinical), Pain},

pubstate = {published},

tppubtype = {article}

}

@article{Kamper2017,

title = {Musculoskeletal Pain in Children and Adolescents: A Way Forward},

author = {Steven J. Kamper and Christopher M. Williams},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Musculoskeletal-Pain-in-Children-and-Adolescents-A-Way-Forward.pdf, PDF},

doi = {10.2519/jospt.2017.0109},

issn = {1938-1344},

year  = {2017},

date = {2017-10-00},

urldate = {2017-10-00},

journal = {J Orthop Sports Phys Ther},

volume = {47},

number = {10},

pages = {702--704},

publisher = {Journal of Orthopaedic & Sports Physical Therapy (JOSPT)},

keywords = {General Medicine, Pain, Physical Therapy, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{McLaren2017,

title = {Increased Substance Use and Poorer Mental Health in Adolescents With Problematic Musculoskeletal Pain},

author = {Nicola McLaren and Steven J. Kamper and Rebecca Hodder and John Wiggers and Luke Wolfenden and Jennifer Bowman and Elizabeth Campbell and Julia Dray and Christopher M. Williams},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Increased-Substance-Use-and-Poorer-Mental-Health-in-Adolescents-With-Problematic-Musculoskeletal-Pain.pdf, PDF},

doi = {10.2519/jospt.2017.7441},

issn = {1938-1344},

year  = {2017},

date = {2017-10-00},

urldate = {2017-10-00},

journal = {J Orthop Sports Phys Ther},

volume = {47},

number = {10},

pages = {705--711},

publisher = {Journal of Orthopaedic & Sports Physical Therapy (JOSPT)},

keywords = {General Medicine, Pain, Physical Therapy, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{Michaleff2017,

title = {Measuring Musculoskeletal Pain in Infants, Children, and Adolescents},

author = {Zoe A. Michaleff and Steven J. Kamper and Jennifer N. Stinson and Lise Hestbaek and Christopher M. Williams and Paul Campbell and Kate M. Dunn},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Measuring-Musculoskeletal-Pain-in-Infants-Children-and-Adolescents.pdf, PDF},

doi = {10.2519/jospt.2017.7469},

issn = {1938-1344},

year  = {2017},

date = {2017-10-00},

urldate = {2017-10-00},

journal = {J Orthop Sports Phys Ther},

volume = {47},

number = {10},

pages = {712--730},

publisher = {Journal of Orthopaedic & Sports Physical Therapy (JOSPT)},

keywords = {General Medicine, Pain, Physical Therapy, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{Kamper2016,

title = {Whose pain is it anyway? Comparability of pain reports from children and their parents},

author = {Steven J. Kamper and Kristina Boe Dissing and Lise Hestbaek},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Whose-pain-is-it-anyway-Comparability-of-pain-reports-from-children-and-their-parents.pdf, PDF},

doi = {10.1186/s12998-016-0104-0},

issn = {2045-709X},

year  = {2016},

date = {2016-12-00},

urldate = {2016-12-00},

journal = {Chiropr Man Therap},

volume = {24},

number = {1},

publisher = {Springer Science and Business Media LLC},

keywords = {Chiropractics, Complementary and alternative medicine, Pain, Physical Therapy, Sports Therapy and Rehabilitation},

pubstate = {published},

tppubtype = {article}

}

@article{Stinson2016,

title = {Models of Care for addressing chronic musculoskeletal pain and health in children and adolescents},

author = {Jennifer Stinson and Mark Connelly and Steven J. Kamper and Troels Herlin and Karine Toupin April},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Models-of-Care-for-addressing-chronic-musculoskeletal-pain-and-health-in-children-and-adolescents.pdf, PDF},

doi = {10.1016/j.berh.2016.08.005},

issn = {1521-6942},

year  = {2016},

date = {2016-06-00},

urldate = {2016-06-00},

journal = {Best Practice & Research Clinical Rheumatology},

volume = {30},

number = {3},

pages = {468--482},

publisher = {Elsevier BV},

keywords = {Pain, Rheumatology},

pubstate = {published},

tppubtype = {article}

}

@article{Swain2015,

title = {Pain and Moderate to Vigorous Physical Activity in Adolescence: An International Population-Based Survey},

author = {Michael Steven Swain and Nicholas Henschke and Steven James Kamper and Inese Gobina and Veronika Ottová-Jordan and Christopher Gerard Maher},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/Pain-and-Moderate-to-Vigorous-Physical-Activity-in-Adolescence-An-International-Population-Based-Survey.pdf, PDF},

doi = {10.1111/pme.12923},

issn = {1526-2375},

year  = {2015},

date = {2015-09-00},

urldate = {2015-09-00},

journal = {Pain Med},

pages = {n/a--n/a},

publisher = {Oxford University Press (OUP)},

keywords = {Anesthesiology and Pain Medicine, General Medicine, Neurology (clinical), Pain},

pubstate = {published},

tppubtype = {article}

}

@article{Swain2014,

title = {An international survey of pain in adolescents},

author = {Michael Steven Swain and Nicholas Henschke and Steven James Kamper and Inese Gobina and Veronika Ottová-Jordan and Christopher Gerard Maher},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/03/An-international-survey-of-pain-in-adolescents.pdf, PDF},

doi = {10.1186/1471-2458-14-447},

issn = {1471-2458},

year  = {2014},

date = {2014-12-00},

urldate = {2014-12-00},

journal = {BMC Public Health},

volume = {14},

number = {1},

publisher = {Springer Science and Business Media LLC},

keywords = {Environmental and Occupational Health, Pain, Public Health},

pubstate = {published},

tppubtype = {article}

}