Pain Smart Education research output

de Melo do Espirito Santo, Caique; Santos, Verônica Souza; Miyamoto, Gisela Cristiane; Chiarotto, Alessandro; Santos, Marisa; Yamato, Tiê Parma

Measurement properties of the EQ-5D in children and adolescents: a systematic review protocol Journal Article

In: Syst Rev, vol. 13, no. 1, 2024, ISSN: 2046-4053.

Abstract | Links | BibTeX | Tags: Medicine (miscellaneous), Pain, Treatment

@article{doEspiritoSanto2024,

title = {Measurement properties of the EQ-5D in children and adolescents: a systematic review protocol},

author = {Caique de Melo do Espirito Santo and Verônica Souza Santos and Gisela Cristiane Miyamoto and Alessandro Chiarotto and Marisa Santos and Tiê Parma Yamato},

url = {https://painsmart-education.sydney.edu.au/wp-content/uploads/2024/02/Measurement-properties-of-the-EQ-5D-Systematic-Reviews-in-children-and-adolescents.pdf, PDF},

doi = {10.1186/s13643-023-02443-7},

issn = {2046-4053},

year  = {2024},

date = {2024-12-00},

urldate = {2024-12-00},

journal = {Syst Rev},

volume = {13},

number = {1},

publisher = {Springer Science and Business Media LLC},

abstract = {<jats:title>Abstract</jats:title><jats:sec>

                <jats:title>Background</jats:title>

                <jats:p>Although the EQ-5D instruments have been initially designed for adult populations, there are new studies evaluating and applying these instruments to children and adolescents. The EuroQol Group adapted and created two versions designed for these groups, i.e., the EQ-5D-Y versions. The measurement properties of the EQ-5D have been systematically reviewed in different health conditions. However, there is a lack of a proper systematic assessment including the studies’ risk of bias and focusing on recent studies assessing the EQ-5D instruments in children and adolescents. The lack of a systematic assessment of the EQ-5D versions does not allow us to have a comprehensive evaluation of the validity, reliability, and responsiveness of these instruments among children and adolescents. This systematic review aims to critically appraise and summarize the evidence on the measurement properties of the EQ-5D instruments (self-reported version – answered by children and adolescents; and proxy versions – versions reported by parents, caregivers, or health professionals) in children and adolescents.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Methods</jats:title>

                <jats:p>A systematic review searching the following electronic databases: MEDLINE, EMBASE, CINAHL, EconLit, National Health Service Economic Evaluation Database (NHS-EED), Health Technology Assessment (HTA) database. Two independent reviewers will screen titles and abstracts and select full texts for eligibility. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) methodology will be followed to conduct three main assessment steps: risk of bias, quality criteria for measurement properties, and evidence synthesis.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Discussion</jats:title>

                <jats:p>This systematic review will provide comprehensive information about the evidence regarding the measurement properties of EQ-5D instruments in children and adolescents of different settings and countries.</jats:p>

              </jats:sec><jats:sec>

                <jats:title>Systematic review registration</jats:title>

                <jats:p>Open Science Framework with Registration <jats:ext-link xmlns:xlink="http://www.w3.org/1999/xlink" ext-link-type="uri" xlink:href="https://osf.io/r8kt9/">https://osf.io/r8kt9/</jats:ext-link> and PROSPERO: CRD42020218382.</jats:p>

              </jats:sec>},

keywords = {Medicine (miscellaneous), Pain, Treatment},

pubstate = {published},

tppubtype = {article}

}

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Abstract
Background
Although the EQ-5D instruments have been initially designed for adult populations, there are new studies evaluating and applying these instruments to children and adolescents. The EuroQol Group adapted and created two versions designed for these groups, i.e., the EQ-5D-Y versions. The measurement properties of the EQ-5D have been systematically reviewed in different health conditions. However, there is a lack of a proper systematic assessment including the studies’ risk of bias and focusing on recent studies assessing the EQ-5D instruments in children and adolescents. The lack of a systematic assessment of the EQ-5D versions does not allow us to have a comprehensive evaluation of the validity, reliability, and responsiveness of these instruments among children and adolescents. This systematic review aims to critically appraise and summarize the evidence on the measurement properties of the EQ-5D instruments (self-reported version – answered by children and adolescents; and proxy versions – versions reported by parents, caregivers, or health professionals) in children and adolescents.

Methods
A systematic review searching the following electronic databases: MEDLINE, EMBASE, CINAHL, EconLit, National Health Service Economic Evaluation Database (NHS-EED), Health Technology Assessment (HTA) database. Two independent reviewers will screen titles and abstracts and select full texts for eligibility. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) methodology will be followed to conduct three main assessment steps: risk of bias, quality criteria for measurement properties, and evidence synthesis.

Discussion
This systematic review will provide comprehensive information about the evidence regarding the measurement properties of EQ-5D instruments in children and adolescents of different settings and countries.

Systematic review registration
Open Science Framework with Registration https://osf.io/r8kt9/ and PROSPERO: CRD42020218382.

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Bogard, Isabelle; Ayre, Julie; Smith, Jenna; Pate, Joshua W.; Sortwell, Andrew; Gorringe, Jonah; Gordon, Georgia; Kamper, Steven J.; Yamato, Tie P.

Exploring Adolescents' Understanding, Experiences and Beliefs About Pain: A Qualitative Study Journal Article

In: Health Expectations, vol. 27, no. 6, 2024, ISSN: 1369-7625.

Abstract | Links | BibTeX | Tags: Pain, Treatment

@article{Bogard2024b,

title = {Exploring Adolescents' Understanding, Experiences and Beliefs About Pain: A Qualitative Study},

author = {Isabelle Bogard and Julie Ayre and Jenna Smith and Joshua W. Pate and Andrew Sortwell and Jonah Gorringe and Georgia Gordon and Steven J. Kamper and Tie P. Yamato},

url = {undefined},

doi = {10.1111/hex.70132},

issn = {1369-7625},

year  = {2024},

date = {2024-12-00},

urldate = {2024-12-00},

journal = {Health Expectations},

volume = {27},

number = {6},

publisher = {Wiley},

abstract = {<jats:title>ABSTRACT</jats:title><jats:sec><jats:title>Background</jats:title><jats:p>Pain is prevalent across the lifespan and contributes to significant societal and economic burdens. The public often holds misconceptions about pain and pain management. Despite this, there are no well‐resourced public health initiatives delivering information about pain and pain management to the public. Adolescence is an opportune time to educate the public about pain. Health interventions designed for adolescents should reflect their understanding, beliefs and experiences; however, no studies explore this in non‐clinical populations of adolescents. We aimed to explore adolescents' understanding, experiences and beliefs about pain to inform the development of a school‐based pain education module.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>We conducted semi‐structured interviews with 25 adolescents in grades 7–10 (ages 11–16) attending Australian secondary schools. Interviews were conducted on video‐conferencing software, audio‐recorded, transcribed verbatim and analysed using Framework Analysis.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>We generated three themes: (i) physical and psychological pain are distinct, (ii) psychological and contextual factors influence how someone feels or reacts to physical pain and (iii) physical pain matters if it impacts participation in meaningful activities.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>Adolescents' understanding and beliefs about pain do not always align with current scientific understanding of pain. School‐based pain education programmes should target these areas of misalignment. Addressing adolescents' misconceptions about pain through pain education could also create a more supportive school environment for adolescents experiencing pain. Interactive approaches to learning, such as discussions that encourage adolescents to reflect on their experiences of pain, could be a promising avenue for pain education.</jats:p></jats:sec><jats:sec><jats:title>Patient or Public Contribution</jats:title><jats:p>Two co‐authors are part of the study population and contributed to the study design and analysis. Their input ensured the interview guide was appropriate for the target population and provided an adolescent perspective on the findings. They were remunerated for their time in accordance with consumer involvement guidelines.</jats:p></jats:sec>},

keywords = {Pain, Treatment},

pubstate = {published},

tppubtype = {article}

}

Close

ABSTRACTBackgroundPain is prevalent across the lifespan and contributes to significant societal and economic burdens. The public often holds misconceptions about pain and pain management. Despite this, there are no well‐resourced public health initiatives delivering information about pain and pain management to the public. Adolescence is an opportune time to educate the public about pain. Health interventions designed for adolescents should reflect their understanding, beliefs and experiences; however, no studies explore this in non‐clinical populations of adolescents. We aimed to explore adolescents' understanding, experiences and beliefs about pain to inform the development of a school‐based pain education module.MethodsWe conducted semi‐structured interviews with 25 adolescents in grades 7–10 (ages 11–16) attending Australian secondary schools. Interviews were conducted on video‐conferencing software, audio‐recorded, transcribed verbatim and analysed using Framework Analysis.ResultsWe generated three themes: (i) physical and psychological pain are distinct, (ii) psychological and contextual factors influence how someone feels or reacts to physical pain and (iii) physical pain matters if it impacts participation in meaningful activities.ConclusionsAdolescents' understanding and beliefs about pain do not always align with current scientific understanding of pain. School‐based pain education programmes should target these areas of misalignment. Addressing adolescents' misconceptions about pain through pain education could also create a more supportive school environment for adolescents experiencing pain. Interactive approaches to learning, such as discussions that encourage adolescents to reflect on their experiences of pain, could be a promising avenue for pain education.Patient or Public ContributionTwo co‐authors are part of the study population and contributed to the study design and analysis. Their input ensured the interview guide was appropriate for the target population and provided an adolescent perspective on the findings. They were remunerated for their time in accordance with consumer involvement guidelines.

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Bogard, Isabelle; Kamper, Steven J.; Sortwell, Andrew; Williams, Christopher M.; Granacher, Urs; Konukman, Ferman; Yamato, Tie P.

Let’s Talk about Pain: Integrating Pain Education into Health and Physical Education Journal Article

In: Strategies, vol. 37, no. 6, pp. 40–45, 2024, ISSN: 2168-3778.

Links | BibTeX | Tags: Pain, Treatment